It all started a couple of years ago; mild lower back pain
followed by visit after visit to doctor after doctor. It
finally turned into excruciating, bedridden back pain which
necessitated being removed from my home through the window of
my second floor bedroom by the Middletown Volunteer Fire
Department. And in April 2003 at Frederick Memorial Hospital,
I was diagnosed with Multiple Myeloma.
Multiple Myeloma (MM) is a rare type of blood cancer. It
affects certain white blood cells called plasma cells that are
part of the immune system. Plasma cells produce antibodies;
proteins that move through the bloodstream to help the body
get rid of harmful substances. When cancer involves plasma
cells, the body keeps producing more and more of these cells.
The unneeded plasma cells, all abnormal and exactly alike, are
call myeloma cells. Multiple Myeloma means the cells collect
in the bone marrow in many bones, and in the hard, outer parts
of bones. They cause damage and weakness to these bones and
also cause hypercalcemia, infection and disease, anemia, and
kidney problems. It can be a very cruel and devastating
disease with no known cause or cure.
After consulting with Frederick Memorial and Johns Hopkins,
information was found on the Internet by my younger brother
about the Arkansas Cancer Research Center (ACRC) Myeloma
Institute for Research and Therapy (MIRT) and the University
of Arkansas for Medical Sciences (UAMS) in Little Rock,
Arkansas. The focus at the Institute is on multi-modality
therapies for increased rates of disease remission. The
treatment consists of high-dose chemotherapy with prescription
drugs - to kill cancerous cells and keep the cancer under
control, stem cell therapy - to harvest immature and healthy
cells, and bone marrow transplants - to give the immature and
healthy cells a chance to mature. More research and some
personal recommendations led me and my family to UAMS. We knew
in our hearts it was the place for me no matter how far or
what the cost. And it's all a little ironic because I was born
in Little Rock, Arkansas and lived there until I was eleven
years old. So, my world suddenly came around full circle in a
way and brought me home again - just not for the right
reasons.
A few days later a catheter was inserted into the left side
of my chest and thus began extensive testing followed by
high-dose chemotherapy. A few weeks later, I had a procedure
called vertebralplasty on my back to relieve my pain, which
was only slightly relieved by the patches that I still wear.
The cancer had attacked and weakened my vertebrae which in
turn had caused approximately eleven fractures. I was totally
dependent on a walker to move even a few steps. In the
vertebralplasty procedure given under general anesthesia and
lasting only few hours, the fractures were literally 'filled
with a cement'. By the time the anesthesia had run its course,
the cement had hardened and I was able to get up from the
gurney and walk again without the aid of a walker. It was a
miracle. The only draw back is that I started this journey at
5'2 ¼" tall. I left the recovery room at exactly 5'tall.
Now it was finally time to begin collecting my stem cells
for my bone marrow transplant in September 2003. A second
catheter was inserted into my chest on the right side and as
the blood was pulled through my body, it passed through a
'filtering' machine which removed my stem cells. Stem cells
are immature cells from which all blood cells develop. They
collected over 20 million stem cells, treated them for disease
and froze them.
In October 2003, I had the first of two bone marrow
transplants. A bone marrow transplant is a lot like a blood
transfusion and takes less than thirty minutes. I had a few
small bouts with nausea and infection but all went pretty much
as planned. My second transplant took place in February 2004
and my wonderful doctor, Doctor Tricot, said remission was
right around the corner. Again, I suffered with nausea,
infection, fever and back pain, but my doctor said that I was
indeed in remission! I am now in what UAMS considers
'Consolidation'. I receive chemotherapy every three months
coinciding with lots of testing to keep on top of things. I
also will continue with the drug therapy which should decrease
with time. I will continue this until February 2005 when I
will go into the last phase, 'Maintenance' where UAMS will
continue to monitor me through testing pretty much for the
rest of my life.
Sooooooooo,,, that's my story and I'm sticking to it.
But of course, I can't finish my story without thanking
everyone for all their love and support. My husband Craig has
been such a hero and my rock. He has worn all 'the hats' this
past year and has done a wonderful job. My love and respect
for him has grown so much and it only confirms the decision I
made almost 14 years ago.
As for my daughter Taylor, she is doing fine as my little
errand runner saving me a lot of time and pain. She is always
giving me a beautiful smile and she believes in a cure. I'm
sure I'll see it happen in my lifetime. I have to believe
that. I have to believe that. I love her with all my heart and
truly believe she has put most if the fight in me.
During my time of need, I have received such wonderful
support, thoughts, prayers, and gifts. I have heard from
wonderful, loving relatives, high school and college friends,
new friends and neighbors, business associates and complete
strangers. The generous souls that I have surrounded myself
with are unbelievable. The kindness has just been a bit
overwhelming. I guess I feel more comfortable giving than
receiving, as selfish as that may sound. When thrown into a
situation like this and people come through for you so
selflessly, it just really makes your heart grow and
strengthen, and it gives you the courage to fight. Despite the
situation I find my health in right now, I feel that I am
truly blessed, and all of you helped me to see that. So, thank
you from the bottom of my heart. I can't imagine where I would
be without my family, friends and UAMS. Thanks to Dr. Tricot
and all the wonderful doctors, nurses, researchers, and staff,
I feel I have a chance at a 'normal' life again. And wouldn't
it be great if they discovered a cure. If you would like more
information, or would like to make a donation, please feel
free to check them out at www.acrc.uams.edu.
Written By Lisa Grimes
Greene